‘Your ideas and thoughts matter’

State seeks comments on Medicaid waiver recommendations by June 15

The message at a recent town hall meeting about recommended changes to state programs for people with disabilities was loud and clear:

“Send an email, send an email, send an email!”

That’s what Jill Hunter, deputy commissioner with the Kentucky Department of Medicaid, told people gathered at the Ralph Rush Center in Florence on May 11.

“Your ideas and thoughts matter,” she said.

The town hall in Florence was one of 10 such meetings held around the state in May to share updates and gather feedback on preliminary recommendations to improve the state’s six 1915(c) Medicaid waiver programs. Those programs are designed to help people with disabilities gain services and supports that allow them to live in their homes and communities rather than institutions.

At this time, Hunter said at the meeting, the state does not plan to reconfigure any of the waivers. The state will continue to seek comments and questions from those affected by the waivers, Hunter said, adding that those on waiting lists for waivers also are encouraged to send comments and questions.  Navigant Consulting, Inc., hired by the state to study the waivers, will use that information to issue final recommendations this summer.

Comments and questions should be directed to MedicaidPublicComment@ky.gov. by June 15 to be considered in the final recommendations. For a summary of the preliminary recommendations, email project manager Lori Gresham at lori.gresham@ky.gov.

The state also plans to compile and share with the public a list of Frequently Asked Questions from the comments received at the town halls and through emails. Hunter stressed the importance of “stakeholder engagement” and said the state will take its time and ask good questions in the review and recommendation process.

The state began assessing the waiver programs more than a year ago. In April 2017, Kentucky hired Navigant to study the waivers and recommend ways to improve them. In the fall, the state held 40 focus groups across Kentucky to gather comments from waiver participants as well as caregivers, family members and providers. Navigant also assessed each waiver and interviewed state staff.

From that work, Navigant created its preliminary recommendations, which were presented at the town halls. The recommendations address issues that include ease of understanding and use of the waivers, participants’ needs assessments, budgets based on individual needs, payment rates for providers, case manager training, and improved participant experiences.

The six waivers are Home and Community-Based, Michelle P., Supports for Community Living, Acquired Brain Injury Acute, Acquired Brain Injury Long-Term, and Model II, which is for individuals who are dependent on a ventilator for up to 12 hours a day.

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Photo from Pixabay.

 

Join us for fall fun

Here’s the update I promised in an earlier post, Special Needs NKy awarded grant, about the community event that’s part of the myNKY Nano Grant program. I hope you can come out and enjoy the day!

Picnic in the Park with Pumpkins

Sunday, October 30, 2016

South Fork Park in Florence

2 p.m. to 5 p.m.

Families dealing with disability or special needs are invited to gather at the park shelter for food, treats, games and music. Enjoy a playground, walking trail, basketball and volleyball courts and lots of open space to play.

You are welcome to wear your Halloween costumes. Bring chairs or blankets if you’d like to spread out.

Please RSVP with the number in your family by Tuesday, Oct. 25, to angie.mimms@gmail.com.

Bean Bash cooks up fun, raises funds

The Bean Bash – a down-home, big-hearted October tradition at Turfway Park in Florence – gets under way this weekend. It’s an event filled with family, friends and co-workers, food, auctions and entertainment, all coming together to help children and adults with disabilities in Northern Kentucky.

The weekend starts with painting and poker Friday night. Volunteers fire up the kettles for the Bash’s signature bean soup early Saturday morning before the start of the Bean Bash Dash, a 5K walk/run. Soup’s on at 1 p.m., and served with it are cornbread, coleslaw, tomatoes, hotdogs, chips, ice cream and soft drinks, all included in the $5 admission. Children under 12 are free.

This will be the event’s 43rd year. That’s a lot of years. And a lot of beans.

To learn more about the event, and all those beans, I talked with Bean Bash President Donnie Martin, who first got involved with the Bash about 10 years ago as a bartender. He moved on to oversee the Texas Hold ‘Em tournament for a few years and is now in his third year as president. Here’s a condensed version of our conversation supplemented with information he sent me.

donnie-martin
Bean Bash President Donnie Martin

Q: I have a daughter with special needs, and I was touched by how many of her friends we’ve seen at the Bean Bash over the years. It’s a huge event but has a welcoming, close-knit feel – like a church festival or something similar. How would you characterize it?

A: It’s a very similar atmosphere as a church festival, but with a lot more wonderful items to be won in the silent and live auctions.  Everyone is welcome, from the most able-bodied athlete to those with special needs who may not often get to special events like festivals.

I greatly enjoy seeing the clients of the specials needs charities in attendance for a couple reasons.  First I’m glad to see so many of them out and about, and I hope that helps them see they are not alone and that many others go through what they go through.  Second I hope the Bean Bash opens other people’s eyes by introducing them to people with special needs that they may not have experienced before.

I grew up with a step sister with special needs. When we first met I didn’t understand why she was the way she was. That wasn’t easy to handle at 7 years old.  Some people reach adulthood with little to no interaction with a person with special needs. Years ago, families with special needs children were shunned, embarrassed, and often hid or abandoned their children with special needs.  Now they have options, and the Bean Bash supports local charities that provide those options.

auction-tables
Bidders browse tables at the Bean Bash silent auction. The auction raises money for BAWAC, New Perceptions, Redwood and Special Olympics of Northern Kentucky.

Q: How much money does the Bean Bash raise?

A: Last year the event brought in a record $121,250. Some money came out of that to cover costs, but we try not to pay for much. Donations from local businesses and individuals keep our expenses down. I would guess we have less than $5,000 in expenses and that might be high.

We support four local charities that serve people with disabilities: BAWAC; New Perceptions, which was added last year; Redwood; and Special Olympics of Northern Kentucky. Each organization collects auction items and receives the proceeds from those. The Bean Bash board’s portion – money from the door, donations, live auction items, and extra events like the 5K and poker tournament – is divided evenly among the charities.

Q:  What’s new at this year’s Bean Bash?

A: We were looking for an event to complement the Texas Hold ‘Em tournament on Friday night and decided on a Wine and Paint event, sponsored by Wine & Canvas of Florence. The cost is $45, which includes supplies and step-by-step instructions to create a piece of artwork to take home. A glass of wine or a cocktail, light food, and admission to Saturday’s Bean Bash are also included.

The Wine and Paint will start at 7 p.m., the same time as the Texas Hold ‘Em tournament. Both will take place on Turfway’s third floor. Registration for the Wine and Paint ends Wednesday, Oct. 5. Participants can register at www.beanbash.org or contact Becky Price at 859-760-3951 for group discounts and pricing. The $75 online preregistration for the Texas Hold ‘Em ends Thursday, Oct. 6. Players can register at the door for $85. The door to both events opens at 6 p.m. on Friday.

We’ve never stayed open after the live auction, but this year we’re having an after-auction concert by popular local band Doghouse. The band has quite a following, so we’re hoping the concert will bring more people out.

Another exciting addition is an employment drive. During the Bash, FedEx will be set up to accept applications for full- and part-time jobs at FedEx Ground in Independence.

Bean Bash by the numbers:

Years held: 43

Organizations helped: 4

Guests expected: more than 2,000

Volunteers: about 300

Bowls of soup: nearly 2,000

Pounds of dried beans: 200

Large pans of cornbread: 40

Hot dogs: 1,200

Bags of chips: 1,000

Gallons of Ice cream: 50

Q: The Bean Bash added a trap shoot last year as an additional way to raise money. How did this year’s trap shoot go?

A: It went well, especially since the rain held off. We had 25 shooters in the tournament, and raised about $1,000. Last year we held the trap shoot on a date after the Bean Bash. This year we did it beforehand, on Sept. 17. We had a lot more people come out this year, and we hope to keep it growing. It was sponsored by the Crittenden AAA Gun Club and held at the Lloyd Wildlife Management Area.

Q: Where do the Bean Bash volunteers come from?

A: We have students who volunteer from many schools including Boone County, Cooper, Ryle, Notre Dame, St. Henry, Covington Catholic, and Immaculate Heart of Mary.  Other volunteers include the charities’ employees, Boone County Business Association members, local pageant winners, news personnel, local celebrities, and family and friends of the Bean Bash board and charities.

Q: Who are the people on the Bean Bash logo?bean-bash-logo

A: The face on the right represents former State Representative Bill McBee, who founded the Bean Bash as a political fundraiser in 1974. The other face is that of Stevie McBee, Bill’s son, who had special needs. Stevie inspired organizers to transform the Bean Bash into a fundraiser for charities serving people with disabilities. Stevie died in 2009, and Bill in 2011.

Many people thought for years that the Bean Bash was a political event, but it has been a charity fundraiser since 1975. No campaigning is allowed.

Q: How is that soup made?

A: The beans get soaked the night before, and the cooks arrive before 6 a.m. to fire up the kettles. Sand goes down on the parking lot, and cooks build fires to set the kettles over, using air deflectors to help regulate the heat. Piles of wood are out there for the cooks to feed the fire. The health department is out there to make sure everything is set up right.

When the water is boiling, the ham hocks go in. Once cooked, the hocks come out and the ham is cut off, chopped and set aside. Next go in the beans, white pepper and onions to cook. Eventually we throw in the ham from the hocks and extra ham. Sometimes hot sauce gets put in, sometimes it doesn’t – it’s always a matter of opinion depending on whose out there cooking.

The soup is cooked for hours in the same cast iron kettles and stirred by the same wooden oars we’ve used for years. They probably have their own special seasoning. One seasoning that’s not added to the beans is salt. We stopped using that years ago, so if you like your beans salty, you need to use the salt packets offered with the meal.

Usually a couple of generations of people come out to cook. Several of the bean cookers started out as kids helping their fathers. They use the lessons they learned as kids to bring their youth into the world of community service.

bean-stir
Volunteers cook the bean soup in cast iron kettles and stir it with oars.

 Bean Bash 2016 Schedule of Events

Friday Oct. 7
6:00 p.m. Registration Open
7:00 p.m. Wine and Paint event begins
Texas Hold ‘Em Tournament begins

Saturday Oct. 8
10:00 a.m. The Bean Bash Dash 5K registration opens
11:30 a.m. The Bean Bash Dash 5K begins
1:00 p.m. The Bean Bash begins, admission $5.00 (kids under 12 free)
1:00 p.m. Silent auctions begin / All charities have items for auction
2:00 p.m. Live music begins
4:15 p.m. First silent auction table closes (Redwood)
4:30 p.m. Second silent auction table closes (Special Olympics NKY)
4:45 p.m. Third silent auction table closes (New Perceptions)
5:00 p.m. Fourth silent auction table closes (BAWAC)
5:00 p.m. The 43rd Bean Bash remarks and presentations
5:30 p.m. Live auction begins
7:30 p.m. (estimated) Doghouse rocks The Bean Bash

Photos provided.

Ms. Wheelchair KY seeks entries

ms-wheelchair-kentuckyI have an aunt who has been instrumental in an organization called Ms. Wheelchair Kentucky for years. I’d heard about it through the family grapevine on occasion but never really knew much about it. Then I started this blog.

Aunt Pat, or Pat O’Bryant to most people, asked me to help get the word out about the upcoming pageant in Louisville. So I looked into Ms. Wheelchair Kentucky to find out what it’s all about.

I found out that Ms. Wheelchair Kentucky is all about education, advocacy and opportunity. The organization gives women in wheelchairs a means to educate society about the achievements and needs of people with disabilities. It gives them a platform to advocate for change to improve the lives of people with disabilities. And it gives them the opportunity to branch out into the world.

I also found out that the pageant, which is not a beauty pageant, has a strong Northern Kentucky connection.

But first, Aunt Pat wants you to know some things:

  • She wants you to know that the organization needs contestants. Now.
  • She wants you to know that the application deadline for the pageant is Monday – but if you need more time, especially to get together the $400 fee that helps pay for the pageant, just let her know. “We will work with them,” she said.
  • She wants you to know that contestants should be US citizens aged 21 to 60 who have lived in Kentucky for at least six months and who use a wheelchair or cart for all of their mobility outside the home.
  • She wants you to know that contestants should be accomplished and articulate because the winner must be able to communicate with the general public, the business community and elected officials.

The Ms. Wheelchair Kentucky pageant will be held Nov. 5. The pageant venue recently changed; it is now Jefferson Community and Technical College at Broadway and Second St. in Louisville. The winner of the state pageant goes on to compete in Ms. Wheelchair America, which will be held Aug. 14-21 in Erie, Penn.

pat-obryant
Aunt Pat, also known as Pat O’Bryant, Kentucky state coordinator of the Ms. Wheelchair America Program

Aunt Pat knows a little about these competitions. While talking with her, I learned that her husband, a.k.a Uncle Tom, used to be the president of Ms. Wheelchair America. And then Aunt Pat was the executive director of the national organization some time after that, in addition to working as the Kentucky state coordinator.

“They’re my heroes,” Aunt Pat said of the contestants. “The things they overcome …[are] unbelievable.”

Now, about that Northern Kentucky connection: Robbin Head, of Burlington, lived in Louisville when she was 38 years old and suddenly found herself with a disability.

She was goofing around with her husband one day when he picked her up from behind in a playful bear hug and her vertebrae fractured. She eventually found out that she had severe osteoporosis and was told it was not a matter of if her vertebrae would fracture, but when. The injury left her paralyzed.

This woman – who had joined the military at 18, had married and lived all over the world – now needed a wheelchair to get around.

Three years after her injury, in 1998, a vocational rehabilitation counselor working with Head in Louisville suggested she enter the Ms. Wheelchair Kentucky pageant. It was the first year for the pageant after an independent delegate from Kentucky, Terri Cecil, won Ms. Wheelchair America and came home to start a state organization.

“The Ms. Wheelchair pageant is what really helped me discover and more understand the world of disability,” Head told me when we spoke on the phone recently.

Head didn’t win that year, but she entered again. She was crowned Ms. Wheelchair Kentucky 1999 and went on to compete in Ms. Wheelchair America. While she didn’t place in the national competition, Head relished spending the week with so many other women in wheelchairs.

“It was probably one of the most rewarding experiences that I have ever been to in all of my life,” she said. “It made you feel like you were really part of a community again and part of actually the real society because you didn’t feel like you were the only one sitting there in a wheelchair.”

robbin-head
Robbin Head, Ms. Wheelchair Kentucky 1999

After her Kentucky reign, Head, who moved to Northern Kentucky in 2000, served as the state organization’s president for six years. More recently, she’s in her sixth year as the pageant’s head judge. As you might expect, she speaks highly of the program and encourages women to participate.

“It’s a way to be in touch with not just being a woman in a wheelchair but a woman of the world,” Head said. “It makes you feel like you’re part of something more than just being yourself, that there’s a place that wants you as a woman or as a person with a disability to use your voice and to use your experience to help others.”

Ms. Wheelchair Kentucky strives to give voice to the needs of those with disabilities of all kinds, whether they are mental, physical or both, she said. The organization, she said, educates the public about special needs and “why we are different and yet very much the same as the able-bodied community.”

If you know a woman in a wheelchair who might be interested in this effort, please get them in touch with Aunt Pat. You can email her at patobryant@bellsouth.net. You can call her at 502-394-9160. You also can visit the Ms. Wheelchair Kentucky website to find out more. And if you think this is a great program and want to support it, Aunt Pat is always looking for sponsors.

Aunt Pat is not the type of person who needs anyone to speak for her, but I’ll go out on a limb here as her niece and say this: Aunt Pat thanks you.

 

Royal Prom ready to shine

September in Northern Kentucky means Oktoberfest celebrations, pumpkin festivals and football. Now a new tradition may be making its mark on the month: The Royal Prom.

The dining, dancing, partying extravaganza for people with disabilities aged 14 and older gets under way Friday at Crossroads church in Florence. In its third year, the Royal Prom seems to have become part of Northern Kentucky, said Brian Kremer, director of Northern Kentucky Capernaum, which organizes the event with local churches, businesses and organizations.

“It seems like everywhere I go people are talking about how much they love the prom or asking about next year’s prom,” Kremer said. “It’s amazing that this has taken root and is something people look forward to each year.”

Kremer likes what this says about Northern Kentucky. “We are serious about loving our friends [with disabilities] in this community,” he said.

That love will be on full display when 350 guests – a full house – converge on the spacious venue at Crossroads to celebrate together thanks to the work of nearly 700 volunteers. Kremer said the guests and volunteers “come from every corner of Northern Kentucky.”

andy-dalton
Bengals quarterback Andy Dalton greets guests at last year’s Royal Prom.

Andy Dalton returns

Much of the prom will be similar to years past, Kremer said, noting that many prom guests like consistency.

Kremer said organizers are “delighted and thrilled” to have Bengals quarterback Andy Dalton return for the second year to announce each guest for a walk down the red carpet. The red carpet starts the night on a high note as volunteers line up to cheer guests on their way into the prom.

Volunteer escorts will welcome guests and accompany them throughout the prom to help ensure everyone has a good time and stays safe. Guests will dine on meals provided by Chick-fil-A in Florence and Newport and dessert from Gigi’s Cupcakes in Florence. They’ll receive flowers – boutonnieres or wrist corsages – and will have the opportunity to hit the dance floor, play games and get their photo taken.

New this year

Some new features this year include a photo booth for more informal, fun photos and jugglers to entertain the crowd.

Also new this year will be the registration and pick-up processes. Guests will register at a tent in the parking lot before walking the red carpet. Registered guests should have received in the mail a wristband they are to wear at prom. The bands note dietary restrictions, allergies and other health information for their escorts to be aware of.

At registration, each guest’s driver will also receive a wristband with the guest’s name on it. The driver must present the wristband at pick-up to make sure everyone goes home with the right person. If drivers are sharing drop-off and pick-up duties, Kremer said, they can use cell phones to send photos of the wristbands to each other and those will be honored at pick-up.

Traffic officers will be new this year, as well, to make getting in and out of Crossroads easier.

Safety has always been a focus. A team of doctors, emergency medical technicians and nurses will wear scrubs so that they can be easily identified in case of a medical emergency. Also, qualified medical personnel will be available if anyone needs help in the restroom.

Volunteers working security will wear referee jerseys for easy identification. Many workers will have radios so that they can communicate easily about any needs or issues, Kremer said.

maddie-and-the-cow
The Chick-fil-A Cow dances at last year’s Royal Prom. According to Chick-fil-A social media posts, Cow looks forward to dancing again this year.

Eric Northrup is back too

Each prom features an uplifting faith message, and this year’s speaker will be Eric Northrup. Northrup is a rock star in this crowd. He started Northern Kentucky Capernaum in 2009 and was instrumental in starting the Royal Prom in 2014. He moved to Cincinnati last year to establish Capernaum there.

Capernaum is a nondenominational Christian ministry that reaches out to teens with disabilities to foster relationships and share the message of God’s love. It is a branch of Young Life, a national ministry in many area high schools. Capernaum organizes events throughout the year, offering Bible studies, monthly “club nights,” summer camps, and other outings.

Joining Capernaum in the prom effort are area churches, businesses and organizations. You can visit the Royal Prom’s website, where, if you scroll down on the home page, you can find a list of prom sponsors. A committee of ten to 15 people work throughout the year, devoting an incredible amount of time, energy, thought and sacrifice, Kremer said. “I’m so thankful for everybody on that committee,” he said. “To me they are heroes.”

Changing the culture

Kremer, as Northrup did before him, talks about changing the culture. So often, people with disabilities are isolated and not given the same opportunities as others, Kremer said. He talks about a society where people with disabilities are seen for the people they are on the inside. He talks about a society where people with disabilities are accepted and loved.

It’s only one night. … We want this to be just what our friends experience every day.

The Royal Prom creates such a night, but, Kremer said, “It’s only one night. … We want this to be just what our friends experience every day.”

While seeing the joy of the prom-goers is richly rewarding, some of the best stories, Kremer said, come from people working at the prom. “It really leaves its mark on our volunteers,” he said. “I encourage people to bring tissues because I guarantee you at some point there will be tears in your eyes.”

Organizers hope that the prom is opening people’s eyes to see more clearly the lives of people living with disabilities. “We get to impact the community too and help change the culture,” Kremer said. “There’s so much more to this than just a prom.”

Photos provided.